By Katherine (posted by Edward)
I’ve been struggling unsuccessfully to explain why I am so furious about and disturbed by Congress’ actions in the Schiavo case. So I decided to follow the first rule of writing: show, don’t tell.
The following excerpts are taken from last night’s House debate, as recorded in the Congressional Record.
Mr. SENSENBRENNER.
"Terri Schiavo , a person whose humanity is as undeniable as her emotional responses to her family's tender care-giving, has committed no crime and has done nothing wrong. Yet the Florida courts have brought Terri and the Nation to an ugly crossroads by commanding medical professionals sworn to protect life to end Terri's life."
"To starve someone to death or to have them die of dehydration slowly is one of the most cruel and inhumane ways to die"
Mr. FRANKS of Arizona.
"It is true that Terri Schiavo lives among us in the shadows of life. But she is not brain dead or comatose. She is awake and she is able to hear, she is able to see, she is often alert. She can feel pain, she interacts with her environment, she laughs, she cries. She expresses joy when her parents visit her and sorrow when they leave."
"If we as a Nation subject her to the torture and agony of starving and thirsting to death while her brother, her mother and her father are forced to watch, we will scar our own souls."
Mr. MILLER of Florida.
"This is not about the sanctity of the Schiavo marriage. That is a matter between Terri and Michael. Mr. Schiavo has got some answering to do himself. Any insinuation otherwise is clear hypocrisy and nothing more."
"That means that the State of Florida may not starve Terri to death unless every legal resource to prevent it has been taken. Death by starvation, as we have already heard tonight, is lengthy and incredibly painful. And Terri Schiavo can feel pain."
Mr. SMITH of New Jersey.
"Mr. Speaker, we meet tonight under extraordinary circumstances, and I for one am very grateful to the Speaker and majority leader DELAY for bringing us back because a much-loved disabled woman in Florida has been ordered to die by starvation and dehydration. We meet tonight because Terri Schiavo's family, including her parents, Bob and Mary Schindler, refuse to allow their precious daughter, who is not in a coma nor is she terminally ill nor is she in a persistent vegetative state, to be killed by starving her to death."
"We meet here tonight because there are serious questions whether Terri Schiavo's estranged husband, Michael, who has abandoned Terri for another woman and has had two kids with the other woman, could be trusted as a legal guardian
for a woman for whom he has sought death for many years."
Mr. GINGREY.
"Mr. Speaker, in response to the remarks a few minutes ago from the gentleman from Massachusetts, I want to say that I am not sure whether or not I am on C-SPAN, but I am absolutely sure that I am not playing doctor, for indeed I am one."
"Although Congress cannot heal Terri, we do have the ability to save her from an inhumane death from forced starvation and dehydration. Mr. Speaker, since Terri Schiavo's brain injury 15 years ago, she has been profoundly disabled. She is not, however, in a coma. She responds to the people around her; she smiles and she can feel. Terri is very much alive… Terri responds to verbal, auditory, and visual stimuli, normally breathes on her own and can move her limbs on command… Florida law prohibits the starvation of dogs, yet will allow the starvation of Terri Schiavo . Florida law does not allow for physician assisted suicide or euthanasia, nor does my compassionate God fearing state of Georgia. Although I am not a neurologist by specialty, my basic courses in medical school taught me that dehydration is a horrific process. It is a process that only the cruelest tyrants in history have used to "cleanse" populations. The patient's skin cracks, their nose bleeds, they vomit as the stomach lining dries out, and they have pangs of hunger and thirst. Starvation is a very painful death to which no one should be deliberately exposed. The tragedy of this situation is that with proper treatment, now denied, Terri's condition can improve."
Mr. FORTENBERRY.
"And through this all, Terri's mother and father are still there with their little girl, loving her, caring for her, asking only for one simple thing: do not starve her to death…Given the complexity of who should have final say over Terri's life, an estranged husband who is now in a common law marriage, or her loving parents, it is only reasonable that additional levels of appeal be given."
Mr. PITTS.
"Mr. Speaker, in America we do not let people starve an animal to death. We do not let them starve prisoners to death. But that is what some would do to Terri Schiavo. This is about the rights of a disabled person. Terri Schiavo is not brain dead or comatose or unconscious… Terri has a brain injury, but otherwise she is healthy. Seven years after the injury, her husband suddenly remembered Terri's wishes about life and death. Her estranged husband has not allowed her any therapy or treatments or rehabilitation in more than a decade since he won the malpractice award, even though many doctors believe that they would help her condition. In fact, she was speaking some words before her treatment stopped. She may not even need the help of a feeding tube if given therapy. Doctors who have seen her certify that she can swallow. Mr. Speaker, this woman needs help, not a death sentence. She needs the warmth of a family that cares for her. She needs the help of doctors who want to treat her, instead of recommending that she die. But her family is not even allowed to help her because of a judge's ruling, a judge who in 5 years has not even bothered to visit her once to see for himself that Terri is not comatose, that she is not unconscious, that she is not in a vegetative state."
Mr. ADERHOLT.
"The truth is Terri is not brain dead. She is awake. She is aware of her surroundings."
Mr. RYUN of Kansas.
"Terri Schiavo does not need the assistance of any machine to keep her alive. She is responsive to the sound, touch, and sight of those caring for her."
"It is time to help Terri instead of just warehousing her. She would have benefited from treatment years ago, but it is not too late now. Terri's parents along with her brother and sister have begged her husband, Michael, to let them take care of Terri. He has not only refused this request, he has denied Terri the rehabilitative care they might have offered her to help with her condition. Now he has had her feeding tube removed and sentenced her to a most excruciating death, citing Terri's own wishes as the rationale."
Mrs. BLACKBURN.
"Now, I interpret and a lot of people have looked at the decision by the Florida judiciary and they interpret this as something that says our society, our country should be willing to accept and facilitate the murder of an adult human being, a human being who has not committed any crime at all whatsoever."
Mr. WELDON of Florida.
"I practiced medicine for 15 years, internal medicine, before I came to the House of Representatives. I took care of a lot of these kinds of cases. Number one, by my medical definition she was not in a vegetative state based on my review of the videos, my talking to the family, and my discussing the case with one of the neurologists who examined her. And, yes, I asked to get into the room and was unable to do so."
"The other thing was this very lengthy pause, and that has also been pointed out by some of the people who have spoken, of 7 years between her original injury and when it was stated that she had prior voiced sentiments of not wanting heroic life-sustaining measures."
Mr. KINGSTON.
"Here is what we do know. Terri is not a PVS, someone in a permanent vegetative state. Florida has a legal definition of this and it states that one has to be permanent or irreversibly unconscious, with no voluntary or cognitive behavior of any kind, and without ability to communicate. Terri is able to laugh, she is able to cry, and she, apparently, can hear. She responds to stimuli, such as voices, touch, and people. Six neurologists and eight medical professionals have testified that she is not PVS, even though her husband has discontinued valuable therapy now for nearly 10 years."
Mr. SCHWARZ of Michigan.
"Mr. Speaker, I shall not try to influence the opinion of anyone on this issue. I will simply share with you my opinion, the opinion of a physician of almost 41 years duration…And I give the gentleman from the State of Washington credit for his knowledge of the physiology of the brain stem. He is right, it is very robust, and that certainly is one of the things that is driving her now. But she does have some cognition and some cortical activity."
Mrs. MUSGRAVE.
"When we talk about a permanent vegetative state, I am offended by that. Terri smiles and acknowledges the people that love her when they come to see her. She cries when they leave. How heartless are we to call somebody like Terri Schiavo a vegetable? What are we thinking?"
Mr. RENZI.
"None of my colleagues on the other side are kin to Terri. None of them are related or are family. The only family she has left wants only to provide her with water and nourishment. Out of Florida, there is no justice. Justice requires her judges to exercise prudence. Where is the legal analysis that weighs the issue of Terri not being allowed a CAT scan and further medical diagnostic evaluation? Where is the balance of the scales of justice that weighs Terri's family's parental rights with those of her estranged husband?"
Mr. SOUDER.
"Terri swallows, shows eye movement, and seems to respond. She is a living human being although with limited competency. Those who would let her die can overplay her handicaps, but they cannot change the fact that she is a living human being who is responsive. Also, her guardian is supposed to protect the person they are guarding, not take the money intended for life support, divert it and offer no rehabilitation efforts. Many others who can swallow their saliva and who can barely do anything beyond that have received help for years. She did not get it because most of it was spent on attorneys by her guardian who wanted to kill her. This is a moral outrage. Her true guardian is her parents at this point. Her husband is in a compromised position. With his fiancee and two children by that fiancee, it would be very inconvenient if she recovered. It is an outrage what is happening."
"Let us not let Easter week 2005 become the week America let a helpless, mentally disabled woman starve to death while the whole Nation watched."
Mr. CONAWAY.
"I would, though, like to address an important issue that we have not talked much about, and that is the conflict of interest that I believe her husband has with respect to his decisions that are supposedly in her best interest. I have spent a professional career as a CPA working under a code of conduct that requires me to function without conflicts of interest. I have to disqualify myself as an auditor if I have got a conflict of interest that is in appearance or in fact. This body has heard much about the importance of conflicts of interest, whether in the Sarbanes-Oxley bill that talks about the relationship of auditors and their clients, or campaign finance laws where it talks about the impact that money has on these conflicts of interest. Terri's husband has, in my mind, a significant and apparent conflict of interest in this matter. Her husband is her guardian, and he is duty bound, in my mind, to make decisions that are in Terri's best interest. Even the most casual observer would conclude that he is conflicted. He lives with another woman. He has fathered two children with this other woman. This is a conflict of interest between what is in his personal best interest and his wife and children's best interests and those of Terri's. We have heard much about Terri's condition tonight, but what we have not heard, though, is much evidence of her current condition, evidence such as tests and MRIs and brain scans and swallowing tests that we could objectively evaluate her condition through these tests. Her husband has categorically prevented this from happening throughout the last 7 years."
Mr. DeLAY.
"Mr. Speaker, after 4 days of words, the best of them uttered in prayer, now comes the time for action. I say again, the legal and political issues may be complicated, but the moral ones are not. A young woman in Florida is being dehydrated and starved to death. For 58 long hours, her mouth has been parched and her hunger pangs have been throbbing. If we do not act, she will die of thirst. However helpless, Mr. Speaker, she is alive. She is still one of us. And this cannot stand. Terri Schiavo has survived her Passion weekend, and she has not been forsaken. No more words, Mr. Speaker. She is waiting. The Members are here. The hour has come."
(FINIS).
All of the statements above are either false or deeply misleading. I must assume that the Congressman and Congresswoman did not knowingly lie, since I cannot imagine what possible motivation they would have for doing so, but they have certainly showed a reckless indifference for the truth.
Almost every factual claim about Theresa Schiavo’s medical condition and every insinuation about her husband’s character are contradicted by more or less the entire legal record. If you don’t trust "activist judges" here's the report of Ms. Schiavo’s court appointed guardian ad litem.
For a contrasting view on feeding tubes, see this document from the Alzheimer’s Assocation. (Caveat: this is one organization's view of the use and withdrawal of artificial nutrition and hydration in one specific context, which is not the same context as the Schiavo case. There are plenty of other sources on this subject; here's one:
Near the end of life, patients and families may naturally be concerned that the lack of fluids and food will cause suffering. While acknowledging their concerns, physicians can reassure them that dehydration is a common, natural part of the dying process. It does not affect the dying patient in the same way as a healthy person who feels thirsty on a hot day or dizzy when standing. Trying to reverse a natural trend often leads to substantial discomfort, without affecting the outcome.16-18 If a patient is not hungry or thirsty, then providing artificial fluids and nutrition will not relieve the symptoms. Some patients may even make a conscious choice to stop eating and drinking.)
For whatever reason, members of my family and extended family have repeatedly had to decide, sometimes with a relative’s written or verbal instructions and sometimes not, whether to insert a feeding tube near the end of a parent or grandparent’s life. As far as I know they have declined in every case but one (it involved a more distant relative—I don’t know if they agreed to have the feeding tube inserted or a hospital or nursing home made the decision for them), and that was the only one where the family felt the decision had really been a mistake.
I should emphasize again: this was all under different medical circumstances from Terri Schiavo, and the Alzheimer's association fact sheet applies to very different medical circumstances from Terry Schiavo. It seems that she has much less cognitive function than a patient with advanced Alzheimer’s disease or any of my relatives, and is beyond any pain or discomfort or awareness of either a feeding tube or the denial of food and liquids. It also seems that she is not capable of assisted oral feeding, and a feeding tube seems very likely to keep her (or at any rate her body) alive for years to come. So it does not directly apply, except that I would say the following:
Food and water are basic necessities of life, but so is oxygen. Eating and drinking come naturally; so does breathing. But there also comes a time when it is natural to lose the ability or desire to swallow food and water, or lose the ability to breathe. To mechanically force food and liquid into the stomach and air into the lungs is certainly a medical treatment--a much more invasive and physically uncomfortable one than asking a patient to swallow a pill. Apparently this is counterintuitive to people, but we have absolutely no business making medical decisions for complete strangers based on our uninformed intuitions.
Many, many, many families face this exact decision about whether to insert or remove a feeding tube for a relative near the very end of their life. I am frankly shocked that so few members of Congress seem to have encountered it. Every year, many, many, many people decline tube feeding and hydration near the end of life, for themselves or for a loved one, with or without a living will. To accuse Michael Schiavo of trying to murder his wife, torture his wife, kill his wife, starve her to death, parch her mouth with thirst, treat her worse than a dog, make her mouth split and bleed--is to accuse all of them of doing
the same to their relatives.
And if they interfere in this case without any consequences, they can interfere in your family’s medical diagnoses, medical decisions, and painful legal disputes, and in mine. On the bright side, I doubt they’ll accuse you personally of murder on the House floor.
Oh. My. God.
I knew they were bad, but THIS bad?
THIS is the commentary - on the floor of the US Congress - by "our" elected officials on the Terri Schiavo case?
I am surprised the chaplain didn't replace "God Bless America" with "God Help America"!
Saddest, of all:
What difference will it make?
Posted by: Jay C | March 22, 2005 at 04:11 PM
The thing about all this that most disturbs me is the outrageous cruelty of those who have lied to Terri Schiavo's parents. This is nothing but the worst kind of con-artistry: taking advantage of their natural feelings about wanting to believe their daughter can get better, by telling them outrageous lies - in order, as far as I can see, to make political capital out of it.
I'm disgusted.
Posted by: Jesurgislac | March 22, 2005 at 04:16 PM
I'm not particularly bothered by rhethoric of compassion; frankly, I wish Congress was more compassionate more often. I'm not too surprised by a lack of understanding of her medical status (except on the part of those asserting they are doctors). It's not the area of expertise of most of those in congress.
What bothers me is the hypocrisy of acting like a single person being taken off life support is the apocalypse when many of these people have actively supported measures which reduce people's access to medical help necessary to sustain life.
Furthermore, Medicare and Medicaid are headed for utter financial crises; they ought to take some of that energy and see about using it to ensure these programs that help the health of millions of Americans don't come apart at the seams.
Posted by: John Biles | March 22, 2005 at 04:22 PM
This, in case you had any doubt, is what's really going on here:
Personally, I think the line about how they can only ban gay marriage so many times should win this guy an award of some sort.
Posted by: Edward | March 22, 2005 at 04:32 PM
Thank you Katherine
Posted by: bob mcmanus | March 22, 2005 at 04:37 PM
Question:
Is it a violation of ethics for doctors to opine about patients not under their care?
Posted by: Happy Jack | March 22, 2005 at 04:38 PM
Here is what the dispute is all about (from today's New York Times).:
Posted by: David Velleman | March 22, 2005 at 04:42 PM
Here is what the dispute is all about (from today's New York Times).:
Posted by: David Velleman | March 22, 2005 at 04:43 PM
"This is exactly the issue that is going on in America, of attacks against the conservative movement, against me and against many others," Mr. DeLay said.
Only a charlatan like DeLay could take a tragedy this poignant and make it all about him.
Posted by: Edward | March 22, 2005 at 04:46 PM
All of the statements above are either false or deeply misleading. I must assume that the Congressman and Congresswoman did not knowingly lie, since I cannot imagine what possible motivation [emphasis added] they would have for doing so, but they have certainly showed a reckless indifference for the truth.
Their motivation -- naked political expediency -- which makes it easy to understand why they find lying expedient.
I would suggest you cross the line and call it what it is -- lying. Part of the reason this type of dishonest discourse works is the reluctance to call it what it truly is. It does not poison discourse by accurately calling out the liars. It is the remedy to counteract the poison caused by such dishonest rhetoric.
Also, there is almost no moral difference between advocating passionately for something by making statements that are recklesly indifferent to the truth, and deliberately lying. Both a deliberate devices to mislead -- one is just craftier than the other.
The accusation of lying should not be made lightly and I believe it should be used sparingly. But it also should not be needlessly withheld when you are slapped in the face with it.
Posted by: dmbeaster | March 22, 2005 at 04:47 PM
Schiavo: Some Legal Questions for You
Can congress pass a law that extends the statute of limitations on claims after the exisiting statute has expired?
QUESTION 1:
Accept for the moment that the statue of limitations for bringing any Federal Claims on behalf of Terri Schiavo would have commenced on the day that Judge Greer first handed down his ruling that Terri Schiavo would have chosen to have the PEG tube removed, on February 11, 2000, and that was more than 5 years ago, and further
accept that the statute of limitations for any Federal Claim that could have been brought is four years, can Congress constitutionally extend, alter or modify the statute of limitations so as to permit the Federal claims that were brought in the Federal Court yesterday to go forward?
QUESTION 2:
If today, Arty Duckworth's wife, Gillian (all taking place in New York), was in a PVS, and she, like Terri, had declared her desires, and Gillian's parents said to keep her feeding tube in, while Arty wants to do what Gillian wanted, i.e., remove the tube, and the NY courts ordered its removal, could Gillian's parents take their case to Federal Court?
QUESTION 3:
On the flip side, ask yourselves this question #2: If today, Arty Duckworth's wife, Gillian (all taking place in New York), was in a PVS, and she, UNlike Terri, had declared her desires TO KEEP A FEEDING TUBE IN, and Gillian's parents said to WITHDRAW her feeding tube, while Arty wants to do what Gillian wanted, i.e., KEEP the tube IN, and the NY courts ordered it KEPT IN, could Gillian's parents take their case to Federal Court TO ENFORCE HER RIGHT TO DIE?
Posted by: Marrty | March 22, 2005 at 04:58 PM
I would suggest you cross the line and call it what it is -- lying.
I agree with dmbeaster. It's time to call it what it is.
Out of curiosity I checked to see what the Weekly Standard had to say about Schiavo and found this by Fred Barnes, which repeats some of the lies quoted by Katherine.
So the rot spreads, and being polite does not help stop it. We are dealing with repeat offenders here.
Posted by: Bernard Yomtov | March 22, 2005 at 05:10 PM
Hey, how about the Schindler's lawyers "case," which basically amounts to "she's a Catholic, ergo Catholic doctrine trumps all."
Posted by: praktike | March 22, 2005 at 05:18 PM
Also, there is almost no moral difference between advocating passionately for something by making statements that are recklesly indifferent to the truth, and deliberately lying.
Mea culpa for the posting rule I'm about to break, but the former is referred to as bullshit.
Posted by: Anarch | March 22, 2005 at 05:33 PM
Apologies for reposting this (especially under a post with the title hubris, as I am asserting that it is so important that it deserves a repost) but on CNN, a nurse named Carla Sauer-Iyer claims that she was Terri Schiavo's nurse from April 1995 to July 1996 with claims of not only swallowing but speech on the part of Terri Schiavo during that time, along with alleged insulin injections by Michael Schiavo. She also claims that the judge's gag order has prevented these facts from coming out. A google yields a huge number of hits on this and google news brings up a few news articles.
I think it is worthy of bringing up again because it shows that these comments by senators are only the tip of the iceberg. This nurse, after bobbing around in the basement of floating memes, rises to the top, and makes her accusations, and, unless there is an X-files like conspiracy, is lying, lying, lying and if the claims that she makes are not dissected by the media that lets her appear, it is just enabling.
CNN also had Pat Mahoney from the Christian Defense Coalition decrying the judge. Interestingly, googling Christian Defense Coalition gets this link that says this:
How come he gets picked as the 'protestor on the street'?
Posted by: liberal japonicus | March 22, 2005 at 06:10 PM
Anarch:
No offense taken, but I would be interested in some reason behind your passion.
Here's my thinking.
1. Factual assertions of the type we are discussing are made with the intention of inducing someone else to believe them and act on their presumed truth.
2. Making such factual assertions carries the moral implication that you have some factual basis for asserting that fact as true. This is a basic moral rule -- the corollary is that if one does not have facts on a subject, morally one should either say nothing or indicate that one is expressing opinion and is not attempting to induce belief and action based on facts.
3. Asserting alleged facts with reckless indifference to whether they are true or not -- you are trying to induce beliefs and actions based on the alleged truth of a facts whether or not they are true. You are deliberately misrepresenting that you have a basis for suggesting that others should also believe and act in reliance on these "facts." Maybe you will get lucky, and the fact accidently is true; or maybe not.
Your motive is very similar to a deliberate lie -- to induce belief and action in reliance on facts when you do not have any reason to believe the facts to be true. We are not talking about a good faith mistake in asserting a factual statement, but reckless indifference to truth. This is simply another form of deception. Lying is worse, but the primary moral evil is deception, and both types of conduct (deliberate lying and reckless indifference) achieve that goal. That is why I stated that morally, they are very similar.
Posted by: dmbeaster | March 22, 2005 at 08:02 PM
I certainly understand why one of my friends who know Rep. Sensenbrenner calls him "big, dumb Jim".
I doubt that any of the people, other than Delay, who made these comments have any idea that they were lying. They were given talking points and spit them out. Most of them displayed profound ignorance of the case and made statements contrary to fact. Sure, doctors have a duty to keep their mouth shut, but being in the House seems to bring out the worst in many.
This is about distracting everyone from the news about Tom Delay's criminal behavior. It seems to be working -- for Tom.
Posted by: freelunch | March 22, 2005 at 08:06 PM
I don't hesitate to call lying lying. But I think people generally persuade themselves they're doing the right thing--e.g. lying about rendition protects intelligence sources. I don't see how you could persuade yourself that lying about her medical condition and falsely accusing her husband and thousands of other Americans of murder from the House floor is doing the right thing. Therefore I think they've actually convinced themselves--based on no serious research at all--that it's true.
I mean, look at this article:
This was written by one of the Schindler family's attorneys
It's less lying, than a complete forsaking of reason.
Posted by: Katherine | March 22, 2005 at 08:16 PM
"[I] placed her in Jesus' care" - this sounds very odd to me. I assume that in a Christian world everybody's in Jesus's care all the time - or at the very least all believers are. And that in such a world attorneys wouldn't get to do the placing regardless.
Posted by: rilkefan | March 22, 2005 at 08:28 PM
No offense taken, but I would be interested in some reason behind your passion.
I wasn't being passionate; I'm simply saying that reckless disregard for the truth is what Harry Frankfurt calls "bullshit" (in his seminal paper-turned-book, On Bullshit), hence the link.
This is simply another form of deception.
I'm going to actually have to read the book at some point, but my understanding is that Frankfurt places it in a different category than mere lying for precisely that reason: it isn't deception, which carries with it the connotation that the speaker is deliberately leading the audience away from the truth, but rather a willingness to lead the audience to a position independent of its relation to the truth. It's that independence -- that orthogonality, for those who dig the geekspeak -- that distinguishes bullshit from lying and potentially puts it into a separate moral sphere.
All of which is far more exciting and exhausting than the intent behind my original comment, which was simply to note that, thanks to Professor Frankfurt, we now have a particular word to describe this particular trope: bullshit. :)
[That's four more rules violations, by my count. I feel like there ought to be a Southpark-like counter in the lower left corner that dings every time I say "bullshit".
*ding* Make that five rules violations.]
Posted by: Anarch | March 22, 2005 at 09:04 PM
Solomon might have suggested that since it is not clear whether Terri's parents or her husband has her best interests in mind, then she should be split in half and one half would then be given to each party. I wonder who then would concede.
Posted by: DaveC | March 22, 2005 at 09:04 PM
then she should be split in half and one half would then be given to each party. I wonder who then would concede.
The real question is: would it make any difference?
Posted by: Anarch | March 22, 2005 at 09:15 PM
I don't know much about the legal side of this, but why this outrage in a nation with the death penalty?
How many execution orders did Bush sign as governor of texas? And now he comes back to save a life that has been almost gone for 15 years, because of " moral values" - how can anyone not see through this?
Where I live - Holland - no one would buy this.
It seems to me that washington - white house, congress and press - are acting out a fairy tale story because so many people prefer a story over reality.
Posted by: rob | March 22, 2005 at 09:16 PM
Rilkefan hit the nail on the head. The attorney doesn't get to place anyone is Jesus's hands. But he thinks he can. That kind of assumption, which is correctly labeled "hubris" in my opinion, is not uncommon in the EXTREME religous right. They really do attribute to themselves devine powers and special access to God and Jesus.
By the way, not all religous fundamentalists are supportive of this debacle. My mother-in-law is every inch a religious conservative and she is appalled. She wouldn't let medics revive her husband when he finally died after a year of bedridden pain. She has empathy ( which is a more Christian quality than hubris) for Terri and the people want to, as she puts it, release her body to follow her soul to Heaven.
Posted by: lily | March 22, 2005 at 09:17 PM
This is an aptly named thread.
Posted by: Macallan | March 22, 2005 at 09:29 PM
Anarch:
Thanks for the follow up and humor. I re-read your link in greater detail, and Frankfurt's point is interesting.
Posted by: dmbeaster | March 22, 2005 at 09:37 PM
Mac, could you flesh out your point?
Posted by: rilkefan | March 22, 2005 at 09:39 PM
Another scintillating "I'm-rubber-you're-glue" contribution from Mac. How do you stay at the top of your game like that?
Posted by: Phil | March 22, 2005 at 09:39 PM
Phil for a guy who claimed to hate content free snark, you sure seem enjoy its usage.
Posted by: Macallan | March 22, 2005 at 09:47 PM
The attorney doesn't get to place anyone is Jesus's hands. But he thinks he can. That kind of assumption, which is correctly labeled "hubris" in my opinion, is not uncommon in the EXTREME religous right. They really do attribute to themselves devine powers and special access to God and Jesus.
Or more likely he misspoke and meant to say something more like "I left her in Jesus' care". I really doubt that he believes that he has some sort of direct control over what Jesus does.
Posted by: kenB | March 22, 2005 at 09:57 PM
From James Q Wilson article in WSJ via NRO:
This policy endorses the right of a person to end his or her life with medical help. It is justified by the alleged success of this policy in the Netherlands.
But it has not been a success in the Netherlands. In that country there have been well over 1,000 doctor-induced deaths among patients who had not requested death, and in a large fraction of those cases the patients were sufficiently competent to have made the request had they wished.
If this is true, rob, then in Holland there is a terrible injustice occuring. That is what we are trying to avoid here. I for one, believe that that when Terri and Michael married, then her primary guardian became Michael, but I can also understand her parents wishes.
This is a very unfortunate tragedy.
Posted by: DaveC | March 22, 2005 at 10:03 PM
My mother and a grandmother, both deeply religious women, died of cancer after more than 2 years of being very ill. They both welcomed death in the end, as they saw it as being released.
This is to me a very Christian way to see death; much more so than clinging to this life no matter what.
Posted by: rob | March 22, 2005 at 10:07 PM
Here is a link to a long excerpt of Harry Frankfurt's On -ahem- B******t.
It's very scholarly but also quite readable.
Posted by: ral | March 22, 2005 at 10:17 PM
I understand, rob. My mother died last year shortly after being diagnosed with a terrible form of cancer (multiple myeloma). My dad, who might be characterized by some here as an extreme right-wing Christian, and the rest of my family considered it to be a blessing, especially to her. She really was fearful of the chemo and then becoming a parapalegic, which often happens with that disease.
Posted by: DaveC | March 22, 2005 at 10:29 PM
Dave C,
I don’t know the sources of this WSJ-article, but the term “doctor-induced deaths” can mean anything from administering aspirin to outright murder.
In the Netherlands, there is not a procedure for people who want to commit suicide (that is still very controversial here too) but it deals with people who are already dying. There is always a balance between limiting suffering and prolonging life, for drugs like painkillers in a very ill body are just poison. In the case of my mother, she started with using painkillers herself; when she could not speak anymore the doctor and my father agreed to keep giving painkillers as long as she gave indications of pain. This meant increasing doses towards the end, and no doubt shortened her life. But this is what we knew she wanted; a few days or weeks longer “life” with more pain was not an option.
Posted by: rob | March 22, 2005 at 10:41 PM
Confused.
Before before, thought:
Torture bad.
Then say:
No.
Torture Good.
Torture Good?
Yes.
Torture Good.
War Good.
Killing Good.
All Good.
Torture Good.
OK.
Torture Good.
Now say:
Torture Bad.
Torture Bad?
OK
But...
Confused.
Posted by: Barry Freed | March 22, 2005 at 11:00 PM
It very possible that Michael gave Terri better care, than she would have him, if their roles had been reversed. And possibly his parents would not have struggled with the situation so long.
I suppose I could say that he should have stopped the feeding before he started another family, or gotten a divorce and moved on with his life, but I think Michael didn't want to be the "bad guy" back then. And so now it has come to this.
Each of us suffers from human frailty. It is part of our nature as much as the many admirable qualities of people. If I were a praying kind of guy, I would pray just as much for Michael as for Terri and her parents.
Posted by: DaveC | March 22, 2005 at 11:05 PM
Let's not forget the trusty doctors in the Senate:
!!!!!!
link
Posted by: Katherine | March 22, 2005 at 11:59 PM
As bad as the practice of medicine has been in Congress of late -- by those with and without licenses -- the practice of law has been downright pathetic. They gave standing and lifted res judicata, but no substantive relief, and thought the parents could just sort of invent a constitutional right of some kind? Who'd they think they were dealing with here? Earl Warren?
Posted by: CharleyCarp | March 23, 2005 at 12:23 AM
One last thing: there's been a lot of talk about the uses of living wills, but family members I've spoken to say that more important is a "durable power of attorney" which designates one person to make decisions for you. A living will is also useful but it's very difficult to predict the exact cirumstances of your condition & it may be that you'd want your relative to be able to override it. I don't think you need a lawyer for a basic version, just witnesses.
Posted by: Katherine | March 23, 2005 at 12:25 AM
has anyone else considered that by making most of the country focus on this issue and determining when human life ends they could then turn around and say "well this should also be the criteria for determining when life begins" ?
Posted by: blah | March 23, 2005 at 01:35 AM
has anyone else considered that by making most of the country focus on this issue and determining when human life ends they could then turn around and say "well this should also be the criteria for determining when life begins" ?
"They" could, but given the recent polls I suspect they wouldn't like the results.
Posted by: Anarch | March 23, 2005 at 04:04 AM
Never claimed to hate it in general, Mac. I just wonder why, since everyone knows you're capable of stringing together more than ten words in a row, why your entire range of contribution here seems to be limited to one-liners. Once again, we're given a situation in which a poster has brought to light an issue, or new information on an issue, and your response is, essentially, "Is not!" Do you have anything to, you know, say about the statements in the post? Or did you actually just expect Katherine and others to scroll down and say, "Ohmigod, Mac is right -- we are being hubristic! We must stop it, now?"
Considering that you threw a snit and didn't comment here during the time that Tacitus was banned, and instantly reappeared the moment he was unbanned, I'd think you'd put a little more effort into things. Snark is fine. Nothing but snark towards people you appear to like and respect -- or have at least said you have, and I assume you're telling the truth -- and whose opinions you appear to want to influence seems worse than useless.
I don't expect you to care much about what I say, but if I had ten bucks to wager, I'd wager that people whose opinion you do care about are as baffled by it as I am.
Posted by: Phil | March 23, 2005 at 06:20 AM
Good God:
"I don't think you have to examine her. All you have to do is look at her on TV."
It's a good thing he's a Senator now. If he were my doctor, I'd be moving to another practice as fast as I could...
Posted by: Jesurgislac | March 23, 2005 at 07:19 AM
Who'd they think they were dealing with here? Earl Warren?
Who, by the way, was also a Republican.
Posted by: dmbeaster | March 23, 2005 at 08:49 AM
Katherine:
It's less lying, than a complete forsaking of reason.
Good point, as to some of them. Or perhaps its faith-based reasoning, if there is such a thing.
As to others (DeLay, Frist), I would say that lying still describes them.
Posted by: dmbeaster | March 23, 2005 at 09:59 AM
It *is* a complete forsaking of reason. That's the underlying issue here, even beyond the family law dynamics and "right to life" dynamics.
What you have is the power and authority of political group asserting its beliefs are more true than the verifiable facts (in this case, facts of medical science and neurology). It's important to the neo-medievalists running the government now that objective, testable, verifiable logic models be delegitimized, in favor of an "I Believe It So It Must Be True" model. Their pet projects don't stand up to factual analysis, so factual analysis has to lose.
The latest philosophical wrinkles involve the Schindlers and their allies saying this particular case should be decided by theology.
One of the Schindler's lawyers argued that the feeding tube must be re-inserted because the Pope says so, it's Catholic doctrine, and Terri was a Catholic. This is really fascinating, because he said obedience to Catholic doctrine should prevail *regardless* of what Terri herself said she wanted (thus apparently acknowledging that Terri did say she wouldn't want to live in her current condition).
And one of the sideshow clowns dressed in priestly garb has said that, since Michael Schiavo committed adultery, Biblical law holds that his marriage to Terri is null and void; therefore, he doesn't qualify as her legal next of kin. Who needs a divorce proceeding? Or a conscious, aware Petitioner? Let the Bible dissolve the marriage, without any input from married couple themselves.
This thinking is as dangerous as it is dingbat. It's like they want to make believe the Enlightenment never happened, that secular society doesn't exist.
Posted by: CaseyL | March 23, 2005 at 11:45 AM
neo-medievalists
Great descriptor! That's exactly what they are, in so many ways!
Posted by: votermom | March 23, 2005 at 12:54 PM
For so many of us, who recently made agonizing feeding tube decision for a beloved parent, this debate is reviving the trauma of the decision all over again. The real dilemma most of us will face involves feeding tubes and dementia, not persistent vegative states. I wish the media coverage would make that clearer.
My incredible mother suffered from dementia probably resulting from a fall down the stairs, Progressive Supranuclear Palsly, a worse than Parkinson's disease, and early Alzheimer's disease. In the last two years of her life, she needed help with all the activities of daily life. Fortunately the family was able to care for her at home because she had long-term health insurance and adequate economic resources. In the last year of her life, she developed worsening swallowing difficulties and died on Good Friday a year ago from aspiration pneumonia.
Several times a feeding tube was recommended. She had made it absolutely clear she didn't want a feeding tube; she stated that in her advance directive. She had decided against a feeding tube for my father in 1987, when he succumbed to end stage Alzheimer's Disease. She spent 14 years as an Alzheimer leader and legislative advocate and educated thousands of people about end-of-life decsions, including memebers of Congress.
Her situation was not comparable to my dad's. She still could communicate, relate to people, enjoyied music, loved watching videos of Broadway musicals, operas, ballet, watch the news She was a reduced version of herself, but she still had some quality of life. She seemed to be responding well to a new medication. Her decline was slow, but her actual death was unexpected. She died peacefully at home, surrounded by her family. Newsday eulogized her as a "teacher, activist, trailblazer."
If we had told ourselves her wishes were not applicable to the state she found herself in, she could well have lived long enough to rejoice over five of her grandchildren's marriages. So of course I have misgivings and doubts about our decision.
Fortunately, thanks to her guidance, her six children were able to agree to follow her wishes. Some of us wishes her directive might have given us more leeway.
We all miss her terribly. In many ways her granddaughter Katherine carries her torch.
Posted by: Mary | March 23, 2005 at 12:58 PM
Well, look. We knew all along that the "sanctity of marriage" meant "non-sanctity of the marriages we don't like", and "activist judges" meant "judges who make decisions we don't like".
You read this, right?
These excerpts from Dr. Cranford's reports are also helpful:
emphasis added.
there's also this, from the document Rivka links to:
One of the latest talking points is that the testimony about Terri Schiavo's wishes is "hearsay evidence" that it was improper for a judge to admit and/or improper for Florida legislature to allow. Of course, Terri Schiavo is obviously not available for cross-examination, so this rule would prevent any testimony about any oral statements from an incapacitated person about the wishes for their medical treatment. This would be an awful, awful, idea. If someone had a living will calling for no heroic measures, but told their spouse in an ambulance that they weren't ready to die yet & did want the doctors to do everything possible if something happened, you would obviously want that evidence to be admissible.
In addition, as far as I can tell, Theresa Schiavo's statements to her husband and husband's family fall within one of the hearsay exceptions in Rule 803 of the Federal Rules of Evidence:
I looked up Florida's rules of evidence, and they have a similar exception:
Under both federal and Florida law, such evidence is admissible even if the person who made the statement is available to testify. So I can't see anything unusual about Florida allowing it in a proceeding like this.
Living wills were also not common and were not necessarily binding on state courts in 1990. Needless to say they still aren't common among people in their twenties. They're a good way to guide your family in sorting through some of the difficult issues, but they are not a foolproof way to stop what's happening in this case.
Posted by: Katherine | March 23, 2005 at 01:16 PM
(hi mom.)
(now I'm horribly embarrassed. well, I should be doing legal research anyway.)
Posted by: Katherine | March 23, 2005 at 01:22 PM
Aw! I loved Mary's post, and to Mary: I for one, think Katherine does great work and only wish she had more time to post articles here.
Posted by: votermom | March 23, 2005 at 01:26 PM
gotta ditto votermom here.
Mary, we're sure the legal research Katherine's skipping to write here is important, but the work she does here makes tremendous difference in many of our lives, so you'll understand if we're torn about where she should focus her energies.
Posted by: Edward | March 23, 2005 at 01:37 PM
Mary: In many ways her granddaughter Katherine carries her torch.
You have a daughter to be proud of. (And it sounds like you had a mother to be proud of, too.)
My great-aunt (I never knew either of my grandmothers) died of heart failure at the age of 93 in her own home, as she wanted, though she was very frail and beginning to suffer from multi-infarct dementia. She was a terrific person: I still miss her. I hope to carry on her legacy, not least her splendid stubbornness. No one ever pushed her around. But I am very, very glad that I never had to make the decision to try and prolong her life by artificial means. She wanted to die at home, not in a hospital or a care home: she got her way. She was good at that.
Posted by: Jesurgislac | March 23, 2005 at 01:54 PM
DaveCBut it has not been a success in the Netherlands. In that country there have been well over 1,000 doctor-induced deaths among patients who had not requested death, and in a large fraction of those cases the patients were sufficiently competent to have made the request had they wished.
I have not read about their competenty to make the request; be aware that 2/3 of the requests for euthanasia are not fulfilled in the Netherlands. About 1/3 because people die beforehand and about 1/3 because people do not meet the requirements. If you are in a coma, or have a brain tumor, you cannot confirm your will to die at the moment of euthanasia, even if you have clearly indicated that you wanted it during the illness. That counts as a death without permission.
I know there have been studies, which have been extrapolated and say that there are probabely about 900 cases per year. Majority of patients were cancerpatients, younger than 65 years, more than half would die within max. a weak and almost 90% would die within max. a month. Trouble is that those studies are less common in other countries, so it is hard to compare figures like that. It might happen a lot more in the States (because people cannot afford treatment or palliative care for instance) but you would not know about it.
The last Dutch study was published in the Lancet (pdf) if you want to see all the figures. Take account of the fact that our new euthanasia law was not in effect though (april 2002, the report deals with figures 1990-1995-2000).
Posted by: Dutchmarbel | March 23, 2005 at 05:32 PM
I don't have a dog in the fight over Ms Schiavo's termination - hell, being starved to death is probably a month in the country compared to what she's been through in the last fifteen years - but I do have to say that no, it's not that simple.
I’m a left liberal Australian; I’m an atheist; I’m in favour of voluntary euthanasia; I’m not bigoted about involuntary euthanasia; but -
No, PVS isn’t that simple or that final. The misdiagnosis rate is huge, the definition is shifty, and the consequences horrendous. Have a look at http://home.vicnet.net.au/~borth/PVS.htm and see whether you disagree with any of it. I’m not jumping on any bandwagon; the first paper on the site was published in 1995.
As I say, I don't mind whether you kill Schiavo, but the price of killing her seems to be agreement to the proposition that people in PVS can't feel pain, which leads inevitably to even more frequent hideous cruelties to the thousands of people diagnosed as PVS who are still hanging around.
And the CAT scans aren't determinative, unfortunately. As Lorber pointed out some time ago in 'Is your Brain Really Necessary?' (http://web.archive.org/web/20030404031139/http://www.enidreed.com/serv01.htm, people can be conscious - indeed, get to university -- with vanishingly small amounts of cortex and a headful of water. Different circumstances, certainly, no clear comparison, but underlining that at our present state of knowledge it's not possible to make a priori statements on what any particular brain geography has to mean.
The relevant comparison isn't between Schiavo's scan and mine or yours; it's between Schiavo's scan and those of other people diagnosed with PVS who have later recovered consciousness, and that's a study that hasn't been done. Some of the europeans - Laureys, for example - are looking at this, but America doesn't seem to see there's an issue.
The only valid test is how the person behaves - measured not at a random visit but after they've had the necessary pre-prep. I'd have to say that Andrews' team at the Royal Hospital of Neurology is about the only group whose techniques I'd trust.
Posted by: Chris | March 23, 2005 at 05:42 PM
My understanding is that the misdiagnosis rate is very high, but the medical scans here, and above all the sheer length of time of unresponsiveness, rule it out as conclusively as it is possible to do.
Posted by: Katherine | March 23, 2005 at 05:47 PM
Looking at the 11th Court of Appeals decision, it looks like Pryor wasn't one of the two dissenters. If I was Bush, I'd be pissed: what's the point of making a recess appointment of a hack if he's going to then wander off the reservation?
Posted by: Urinated State of America | March 23, 2005 at 05:51 PM
Damn, that mother/daughter thing up-thread was so cool.
Posted by: NeoDude | March 24, 2005 at 11:25 AM
I wonder how many of the people supporting intervention in the Schiavo case are smokers?
Would they understand that they are busy giving congress precedent to intervene for their own health and take away their cigarettes? I suppose they're safe in the knowledge that congress wouldn't do that to big tobacco though...
Posted by: dislekcia | March 26, 2005 at 06:16 AM